SPEAK UP! 2016 Unites, Energizes & Mobilizes New & Seasoned Advocates

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Months of planning and preparation from PWN-USA’s Summit Planning Committee, Board, staff and presenters paid off last month, as 250 women living with HIV from 29 states, the U.S. Virgin Islands, Puerto Rico and Canada came together in Fort Walton Beach, Florida, for SPEAK UP! 2016 National Leadership Summit for Women Living with HIV.

The theme of this year’s Summit was Organizing for Power. With 6 plenaries and 7 breakout session blocks, the schedule was chock full of information and opportunities for learning, discussion and hands-on practice. Workshops and affinity sessions, the vast majority of which were presented or facilitated by women living with HIV, fell into the following five tracks: Policy & Advocacy; Effective Leadership Skills; Advancing HIV Research, Care & Prevention Agenda; Rights, Power & Justice; and Media & Strategic Communications. Sessions received overwhelmingly positive evaluations from participants. Plenary sessions, all with powerhouse speakers, tackled urgent topics ranging from federal HIV policy to trans-centered reproductive health care to intergenerational leadership. (Check out the full program here!)

But the busy schedule did not stop participants (and presenters) from making new friends and/or catching up with old ones, finding some inner peace and just letting loose and having fun. From yoga and meditation sessions on the beach in the mornings, to film screenings to crafting to karaoke at night, the Summit offered something for everyone. (Check out photos on Facebook!)

Don’t just take it from us. Here is what just a few of our participants have said about SPEAK UP! 2016:

“After much time spent learning with my sisters, I have to say being a princess is nothing without true solidarity in sisterhood. I had a wonderful time at the Summit 2016 with PWN and ALL my sisters…I am using my call to action challenge to use the information to reach others, and be the change I wish to see. Standing up and using my voice not only helps me; it helps those not fully ready or unaware of just how powerful our voice can be. When we speak up for ourselves, we empower others to do the same. I am now fully aware of what I need to do to move forward. I am prepared to speak up and ask those tough questions. I will not back down; instead, I will call on the power of my sisters. Together, we will make the difference and we will be heard…I am so touched with love, I forgot I had any problems. I only feel love, refreshed, joy, inner peace and hope for a restoration from those who tried to take me down. I am just where I need to be right now…I will see you all on the conference calls , webinars and in person at the next event.” – Angel S., Florida

“I am so glad I came! This is my first time coming and I love it. I met a lot of women and heard their stories. I can’t wait for the next one. When I get back to New York, I will pass on the information to other women.” – M. Hunt, New York

“I am so proud to be a part of the Summit. I have met some strong, powerful women, and I’m learning a lot to take back to Houston.” – Tana Pradia, PWN-USA Greater Houston Area

“They told us we will not live past 10 years. But here we are. PWN Summit. We are still here. Speak Up: gathering of powerful women. We are the experts.” – Tammy Kinney, PWN-USA Georgia

“This year the Summit was amazing! Louisiana ladies came out in force. In 2014 we had 8 women; this year we brought 12, and we are planning on 20 for the next Summit.” – Meta Smith-Davis, PWN-USA Louisiana

Were you at SPEAK UP! 2016? Would you like to share your experience with others? Submit a blog post for our #PWNspeaks blog! Click here to get started!

Thank you so much to our Summit Planning Committee, our Board of Directors, our sponsors, our fabulous presenters and moderators, and everyone who participated in SPEAK UP! 2016 for your crucial contributions in making the Summit a success.

If you haven’t seen it yet, check out this beautiful, powerful video produced by Pozitively Dee of Colorado during and after the Summit:

 

250 Women from 29 States, DC, the U.S. Virgin Islands, Puerto Rico & Canada SPEAK UP!

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Regional Organizing Institute, Tuesday, September 27

September 28, 2016: After many months and countless hours of planning, organizing and collaborating on a common vision by our Summit Planning Committee of over 20 women living with HIV, SPEAK UP! 2016–the only national leadership summit for women living with HIV–is finally here!

The Summit kicked off Tuesday with three special Institutes: one for leaders of PWN-USA’s eleven official affiliated regional chapters; one for women of trans* experience, led by Positively Trans; and one for young women living with HIV. The full-day institutes gave participants an opportunity to connect, prioritize issues and strategize around how to elevate those issues and reach their goals.

Tuesday evening, the full Summit opened with the plenary State of the Movement featuring 5 fierce panelists: Khafre Abif, Cecilia Chung, Grissel Granados, Vanessa Johnson and Andy Spieldenner, who discussed what the HIV movement is today, what is working, what is not, what needs to change and how intersectional issues affect people living with and vulnerable to HIV. The plenary was followed by a special screening of the documentary co-directed by and featuring Grissel Granados, We’re Still Here, following young people who were born with HIV and the unique challenges they face.

Wednesday morning started with an all-star panel discussing federal policy around HIV, women’s health, health care access and reproductive rights, featuring Dr. Amy Lansky, Director of the Office of National AIDS Policy; Marty Bond, Senior Public Health Advisor for the Office on Women’s Health; Bill McColl, Esq., Director of Health Policy for AIDS United; and Monica Simpson, Executive Director of SisterSong. And much, much more is still in store as SPEAK UP! 2016 continues!

To keep up with the latest, follow the hashtag #pwnspeaks on Twitter (and follow us @uspwn), and check our Facebook page for updates–and of course our Facebook photo album!

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Young Women’s Institute, Tuesday, September 27
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Institute for Women of Trans Experience, Tuesday, September 27

SPEAK UP! 2016 – Registration Closed

August 2: Are YOU ready to speak up? SPEAK UP! 2016, the ONLY national leadership summit created by and for women living with HIV, is happening next month in Fort Walton Beach, Florida–and everyone is talking about it!

 

Registration is now closed, as we have reached capacity. If you would like to be added to our waitlist, please email your contact info (name, location, phone number and email) to pwnsummit@gmail.com.

For more information about the Summit, click here.
Registered for the Summit but have not submitted our questionnaire with important participant information yet? Click here.
Attending the Summit and have questions? We have answers. Check here.
Want to support the leadership of women living with HIV by sponsoring the Summit? We are still working to meet our fundraising goal! Learn more here.

Young Women Living with HIV Deserve Support and Leadership Roles in HIV Community

PWN-USA Statement for National Youth HIV/AIDS Awareness Day

APRIL 8, 2016: Young women living with HIV have unique needs that often go unaddressed. HIV stigma, discrimination, ageism, complexities of treatment regimens, and economic challenges present a unique set of barriers to care and service delivery that can result in isolation, depression, and poor health outcomes. Navigating disclosure, dating, sex, employment, education, and parenting may be entirely different for young people living with HIV than for older adults. For those born with HIV, the realities of being a long-term survivor at age 20, 30, or 35 may have particular physical and psychological implications. In the United States, mass incarceration, community violence, and growing economic inequality may be affecting young generations impacted by HIV in unprecedented ways.

“When we talk about the needs of women, social support is critically important to our overall wellbeing,” says Grissel Granados, a young woman born with HIV who currently works as an HIV and STI testing coordinator in Los Angeles, and who released a documentary last year, We’re Still Here, exploring the complexities and challenges of growing up with an HIV diagnosis. “Even as we have seen funding cut for women’s support groups, communities of women have found ways to come together anyway. However, for young women living with HIV, it is much harder for them to create community with other young women–being that they are so few in numbers in any given city, young women don’t even know each other. There are not enough young women participating in larger HIV spaces because their needs are not being addressed and because they are not seeing themselves. As a larger community of HIV advocates, we need to make sure that we are intentional about including young women and supporting spaces that can bring young women together, even if it’s just to build a network for social support.”

In honor of this year’s National Youth HIV/AIDS Awareness Day (NYHAAD), Positive Women’s Network – USA (PWN-USA) calls for a national commitment to addressing the needs and upholding the rights of young people living with and vulnerable to HIV. Advocates for Youth has just released a NYHAAD Bill of Rights, proclaiming:

1. The right to live free from oppression,
2. The right to education,
3. The right to prevention,
4. The right to care and treatment, and
5. The right to live free from criminalization, discrimination and stigma.

“It’s an aspiration of mine to see something like this NYHAAD Bill of Rights in full motion because our young people are worthy to walk in this world with all provided tools, absolute support and love,” says Tranisha Arzah, a PWN-USA Board Member born with HIV who works as a peer advocate in Seattle. “If we demand these rights, with the full support of the larger community, young people can not only thrive but lead the way toward a future where barriers to prevention, treatment and care like stigma and discrimination no longer exist.”

PWN-USA wholeheartedly endorses this bill of rights. As we move well into the fourth decade of the HIV epidemic, we further call on the HIV community to endorse and actively promote leadership by young people living with HIV. We believe that if this epidemic ever sees its end, it will be because of effective, supportive and strategic intergenerational leadership building on the lessons of the past while looking toward a radical and visionary future.

PWN-USA is fully committed to empowering and supporting young women living with HIV to organize and strategize; to demanding and upholding their rights to healthcare, including sexual and reproductive care, that works for them and meets their unique needs; and to ensuring their meaningful participation in decision-making spaces.

We urge young women to present at and/or attend 2016 SPEAK UP! A National Leadership Summit for Women Living with HIV, where they will be welcomed, embraced, and where they can educate other women on their needs, concerns and vision.

Please join us on Twitter today at 4 PM ET/1 PM PT for a dynamic Twitter chat with Advocates for Youth about Article 5 of the NYHAAD Bill of Rights: The Right to Live Free from Criminalization, Discrimination and Stigma. Follow the hashtag #NYHAADChat and join the conversation. See you online!

Sister Warriors

By Wanda Brendle-Moss, PWN-USA Member

This article originally appeared on March 4, on The Well Project’s A Girl Like Me blog.

Wanda Brendle-Moss.
Wanda Brendle-Moss.

As we approach National Women and Girls HIV/AIDS Awareness Day on March 10, 2015, my mind is taking a magical mystery journey…

Start Date 1981, the beginning of what would be my 20 years as a Registered Nurse. There was a disease formerly known as GRID, now given a new name, HIV, Human ImmunoDeficiency Virus, and in the advanced stages called AIDS. I worked at North Carolina Baptist Hospital (Now Wake Health) a #1 rated Medical Center in my area. Even given that we were supposedly gifted with some of the medical community’s greatest minds…people admitted with this virus were dying.

For me as a new nurse (I was 27, a single mother of 2, having attended nursing school after the break up of my 1st of 3 marriages) there were several things that went through my mind. My son was about to become a teenager, so when we were all watching the news and the virus was given a name, explaining how it was spread, etc., I told my son that no matter what, he was to respect himself and whomever he chose to eventually have sex with by always, always using condoms.

The other thing that was happening at the hospital…being the “new kid” on the floor…Typically assignments that others did not want went to the new kid. And whenever one of “those men” was admitted, I typically would be their nurse, the difference being…I was unafraid. They were someone’s loved one…and my nursing philosophy to the day I stopped nursing was…every patient is someone’s father, brother, mother, sister, son, or daughter…and I treated them as I wanted my family members treated.

What struck me though was…Where were the women?? … Click this link to read the rest of this article, and view even more photos of Sister Warriors, on The Well Project’s A Girl Like Me blog!

Everything You Need to Know About SPEAK UP!

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Lepena Reid, Janet Kitchen and Rose Todd, South Florida

SPEAK UP! A National Leadership Summit for Women Living with HIV is just one week away! Here’s everything you need to know, whether you’re coming to the Summit or following the happenings there from afar:

PWN-USA SPEAK UP! Summit Orientation Webinar – slideshow and voice recording of a helpful presentation on the ins and outs of the Summit (here’s a PDF of just the slides from the webinar)

SPEAK UP! Summit Official Website – the place to go for the full program, information on travel, a list of our generous sponsors, and much more!

“I’m Going to SPEAK UP! Because …” – videos and images from SPEAK UP! Summit participants about why they’re making the trip to Fort Walton Beach

Want to volunteer at SPEAK UP!? Contact Nerissa Irizarry to sign up: 510.698.3811 | nerissa.pwnusa@gmail.com

Here’s some background information on the Summit if you want to know more!

Like us on Facebook and follow our Twitter account and the hashtag #PWNSpeaks for up-to-the-minute updates from the Summit!

For those who are coming to SPEAK UP!:

SPEAK UP! A National Leadership Summit for Women Living with HIVWHAT DO I BRING??

  • Dress – Summit dress code is casual to business casual for hot weather. Bring your best pj’s because you will be sharing a room and we are planning a pajama party! Other suggestions:
  • Beach towels
  • Enough Meds – couple extra days supply just in case
  • Medical insurance card
  • Cellphone charger if you have your cell
  • Laptop and charger if you need one
  • State-issued ID
  • Sunscreen and hat for the sun, bathing suit if you plan to get in pool or ocean
  • Refillable water bottle
  • Extra business cards if you have them for networking
  • $30, in cash or on your debit card, to present at check-in for hotel incidentals (will be refunded)

Upon arrival at the Ramada Plaza Beach Resort:

  • 2 pm: Summit registration
    Fill out a few forms, get your program & conference bag!
  • 3 pm: Hotel check-in
    You will be assigned a shared, double room with mini-fridge & microwave
  • 5 pm: Summit opening session and dinner begins

Florida, here we come!!!

Looks like we made it!
Looks like we made it!