On #NWGHAAD, PWNers Assert and Celebrate #BodilyAutonomy

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March 16, 2017: For National Women and Girls HIV/AIDS Awareness Day (#NWGHAAD), PWNers from coast to coast hosted and participated in events, in person and online, raising awareness and educating our communities about HIV and its impact on women and girls and asserting the bodily autonomy of women living with HIV.

From the Women Living Conference in Atlanta (PWNer Shyronn Jones shares her experience there in this blog) to a special event focused on the theme of bodily autonomy in Philadelphia, PWN-USA members and regional chapters took advantage of the occasion to speak out, share our stories and advocate for our rights. You can see the events PWN-USA members and chapters hosted, participated in and/or presented at here. And check out the slideshow above! Continue reading “On #NWGHAAD, PWNers Assert and Celebrate #BodilyAutonomy”

On #NWGHAAD, We Celebrate #BodilyAutonomy

March 10, 2017: Today is National Women & Girls HIV Awareness Day. In honor of the approximately 300,000 women living with HIV in the United States, please join Positive Women’s Network – USA in asserting and celebrating the bodily autonomy of all women and girls living with HIV, including women of trans experience.

NWGHAAD 17 graphic v2-01Yesterday, we presented Bodily Autonomy: A Framework to Guide Our Future in a special webinar (watch the recording here!) Today at 12 PM EST/9 AM PST, we continue the conversation on Twitter using the hashtags #NWGHAAD and #BodilyAutonomy with special guests from HIVE, SisterSong, Desiree Alliance, The Well Project, Positively Trans, Arianna’s Center and Prevention Access Campaign. We invite you to join the conversation online! You can also access our complete #NWGHAAD #BodilyAutonomy social media toolkit here, complete with sample social media posts and shareable graphics.

The Bodily Autonomy Framework is available here (Download the printer-friendly PDF version of this framework here.)

Women and girls living with HIV across the U.S.: Today, and every day, we honor you. Allies: Thank you for your continued support and commitment to upholding the rights of women living with HIV.

A Price Too High – Speak Out Now!

December 16, 2016: Last month, the president-elect announced his decision to nominate ardent opponent of women’s health and the Affordable Care Act (ACA; a.k.a. “Obamacare”) Representative Tom Price (R-GA) to serve as Secretary of the Department of Health and Human Services (HHS) and health policy consultant Seema Verma as the chief administrator for the Center for Medicare and Medicaid Services (CMS).

Who is Tom Price?

Rep. Price, who is formerly a practicing orthopedic surgeon, has a long record of opposing abortion access and other reproductive rights and has voted several times to defund Planned Parenthood. He has also been a leader in the charge to repeal the ACA and supports shifting Medicaid programs to block grant funding structures with less federal oversight and fewer protections for low-income people.

Who is Seema Verma?

Verma worked alongside Vice President-elect Mike Pence as a key architect of Indiana’s Medicaid expansion program, which erected barriers to low income people maintaining coverage, such as requiring enrollees at the poverty line to pay into the program and penalizing missed contributions with lockouts or more restrictive plans lacking benefits like dental coverage.

What does this mean?

Rep. Price’s leadership of HHS–the government agency that houses Health Resources Services Administration/Bureau of HIV/AIDS (HRSA HAB), home to the Ryan White CARE Act providing care and treatment to hundreds of thousands of people living with HIV, the Center for Disease Control (CDC) and most federal health related agencies–could have grave consequences for women living with HIV. With Price and Verma at the helm of the federal health care system, safety net coverage and assistance programs could see unconscionable cuts in the name of free-market approaches and “personal choice.” This could hinder access to lifesaving treatment and even further curtail the reproductive autonomy of women living with HIV, who are more likely to be low-income and rely on publicly funded coverage options.

For more information on what’s at stake for women’s health if the ACA is repealed under Price’s leadership:

http://www.raisingwomensvoices.net/if-i-lose-coverage

http://familiesusa.org/blog/2016/12/urban-institute-finds-30-million-could-lose-health-insurance-under-aca-repeal

For more information on projected changes to Medicaid and other safety net programs:

http://www.cbpp.org/research/health/medicaid-block-grant-would-slash-federal-funding-shift-costs-to-states-and-leave

Take Action!

Both Verma and Rep. Price will be subject to senate confirmation by majority vote but will first be vetted by two key committees, the Senate Health Education Labor and Pensions (HELP) and Finance Committee, likely in the first few weeks of the new year. Before these hearings take place, it is critical that we hold our elected officials accountable to vigorously interrogate the records of these nominees and press them to answer tough questions about their plans to dismantle the nation’s health care safety net, as well as the sexual and reproductive health care delivery systems our communities rely heavily upon.

Check here to see if your senator is a member of the Senate HELP or Finance Committee and call, write and/or tweet them to express your opposition to Rep. Tom Price as our next HHS Secretary and Seema Verma as the next administrator of CMS.

Sample script for email or phone call
Dear Senator:
My name is [your name], and I am a constituent from [your state and city]. I’m [writing or calling] to express my opposition to the nomination of Rep. Tom Price to lead our nation’s federal health care system. The ACA has expanded coverage to more than 20 million people including people living with HIV. Rep. Price’s voting record reflects that he does not support access to the comprehensive healthcare needs of women living with HIV.

Dear Senator:
My name is [your name], and I am a constituent from [your state and city]. I’m [writing or calling] to express my opposition to the nomination Seema Verma to lead CMS. Medicaid program reforms as proposed under Verma’s leadership will prevent low income women living HIV from maintaining coverage and accessing life-saving treatment.

Sample tweet
@[Senator’s handle] We cannot afford to lose #healthcare! Please oppose@RepTomPrice for HHS & Seema Verma for CMS!

Honoring the Legacy of the Obama Administration on HIV

December 1, 2016: This #WorldAIDSDay, Positive Women’s Network – USA honors President Obama’s legacy in addressing the domestic HIV epidemic. Over the past eight years, the Obama Administration has advanced essential human rights protections for people living with HIV while ensuring meaningful involvement of the communities most impacted by HIV.

president_official_portrait_hiresIn 2010, President Obama formally finalized the repeal of the HIV travel ban, which barred entry into the U.S. of people living with HIV, allowing the International AIDS Conference to return to the U.S. following an absence of more than 2 decades. The move not only ended a policy of state-sanctioned discrimination, it conveyed an accurate public message that people living with HIV are not a public health threat, and that banning or isolating people living with HIV is not the way to fight the epidemic.

Candidate Barack Obama committed to develop and release a national plan to address the domestic HIV epidemic – a promise he fulfilled in July 2010 with the release of the first ever National HIV/AIDS Strategy (NHAS), a comprehensive approach to domestic HIV prevention, care, and social justice issues intersecting with human rights. In particular, we commend President Obama for the Administration’s focus within the NHAS on review and repeal of HIV criminalization laws, increased employment opportunities for people living with HIV, and, more recently, commitment to addressing HIV-related stigma through broad-based social action. The Affordable Care Act prohibited insurers from discriminating against people with pre-existing conditions (including HIV) and increased access to essential sexual and reproductive health services, including guaranteed coverage of contraception, preventive services for women’s health, and screening for domestic violence.

obama-wad-2013President Obama reactivated and redefined the Presidential Advisory Council on HIV/AIDS (PACHA), which was first convened by President Clinton in 1995 but receded under President Bush, with few meetings or recommendations and some questionable appointments. Under President Obama, PACHA not only increased representation and meaningful participation of people living with HIV from impacted communities, including young people, people of color and of trans experience, but also maximized their expertise and contributions in developing the updated NHAS 2020 and the federal action plan.

We would additionally like to take this opportunity to honor and uplift the following individuals who have helped to vision, lead, and organize a coordinated and powerful domestic HIV response in the Obama Administration.

crowley_colorJeffrey Crowley

Jeff Crowley was the first Director of the White House Office of National AIDS Policy in the Obama Administration as well as Senior Advisor on Disability Policy, serving in these capacities from February 2009-December 2011. Jeff led the development of our country’s first domestic National HIV/AIDS Strategy (NHAS) for the United States, which continues to guide the Administration’s efforts in this area. He also coordinated disability policy development for the Domestic Policy Council and worked on the policy team that spearheaded the development and implementation of the Affordable Care Act. Since leaving the White House, Jeff has remained deeply involved in the community and instrumental as a policy expert and thought leader on HIV, disability issues, and access to healthcare for low-income communities. Thanks, Jeff, for your ongoing commitment to people living with HIV.

gregorio-millettGregorio Millett, MPH

Detailed from the Centers for Disease Control and Prevention (CDC), Greg Millett served as Senior Policy Advisor at ONAP, helping to write the first National HIV/AIDS Strategy. Greg’s extensive research on HIV incidence among black gay and bisexual men has helped to frame a national conversation on the importance of addressing HIV in this community.

jamesalbino-e1311377540427-150x150James Albino

James Albino served as Senior Program Manager in the White House Office of National AIDS Policy during Jeff Crowley’s tenure, leaving to head the White House Task Force on Puerto Rico. While at ONAP, James was instrumental in the creation of the Federal Interagency Workgroup on HIV, Violence Against Women, and Gender-Related Health Disparities. He also championed a domestic focus on the Latinx community as well as funding and HIV services for Puerto Rico.

lynnrose_0Lynn Rosenthal

As Senior Advisor to Vice President Biden, Lynn Rosenthal served as the White House Advisor on Violence Against Women and co-chaired the Federal Interagency Workgroup on HIV, Violence against Women, and Gender-related Health Disparities. Lynn’s commitment to hearing directly from impacted communities was clear to us, as was her background in leading direct service provision. As a keynote speaker at PWN-USA’s 2012 International AIDS Conference pre-conference for women living with HIV, Ms. Rosenthal stayed and spent time with our members for several hours to better understand their experiences. We value and appreciate this kind of commitment to the community.

grant-colfax-204x300Grant Colfax, MD

Grant Colfax served as Director of ONAP from March 2012 through December 2013, during which time he helped develop and launch the HIV Care Continuum Initiative, designed to increase access to HIV testing, care, and treatment rates.

 

 

douglas-brooksDouglas Brooks, MSW

Under Douglas Brooks’ leadership, the White House Office of National AIDS Policy (ONAP) was guided for the first time by a Black gay man openly living with HIV. He showed commitment to addressing the disproportionate impact of HIV on Southern states, gay and bisexual men, Black women, youth, and the transgender community, as well as to exploring and addressing the complexities of disclosure. We appreciate Douglas ensuring a focus on addressing stigma, as well, as employment, in the NHAS.

amy-lanksyAmy Lansky, PhD, MPH

Dr. Amy Lansky began serving as Director of ONAP in March 2016 upon Douglas Brooks’ departure and previously played a key role in the writing and release of NHAS 2020. Under Amy’s leadership, new developmental indicators for the National HIV/AIDS Strategy addressing stigma, and engagement in care and treatment for women of trans experience were released today. We are additionally appreciative of Amy’s presentation at PWN-USA’s Speak Up! Summit this September, demonstrating her commitment to advancing and investing in PLHIV leadership.

Trans Resilience & Resistance in Changing Times

November 18, 2016: Transgender Day of Remembrance—or Transgender Day of Resilience, to give full credit to the power, strength, creativity and determination our brothers and sisters of trans experience have shown in the face of relentless persecution—is observed November 20 of each year.

On this solemn but critically important day, and every day, Positive Women’s Network – USA commits to hold and uplift our transgender siblings and to do all within our power to protect them from the outpouring of hate, encircle them in love and give a platform to their voices.

This year, TDOR falls just 12 days after an election that threatens to roll back decades of progress for many communities—immigrants, LGBTQ, people of color and women—but which is particularly foreboding for the transgender community. As people of trans experience have increased their visibility in a struggle for equal rights and protection under the law, they have also faced hate crimes, including murders. Far too often, our trans family are further brutalized even in death, misgendered in the news. In fact, pervasive misgendering by police departments and media sources make it difficult to keep an accurate count of murders of transgender individuals, and can also impede investigation of incidents as hate crimes.

Separately from threats of physical violence, simply accessing health care, housing, education and employment opportunities can be like navigating a minefield for people of trans experience.

Please read the following statement from Jada Cardona, a Latinx woman of trans experience living in New Orleans, Louisiana, which was written prior to last week’s election.

Transgender People in the South Need Meaningful Change

by Jada Cardona, Executive Director of Transitions Louisiana

dsc_0013Being transgender in the Southern United States has its unique set of challenges. We can consider it positive movement when we haven’t lost any footing but unfortunately, there is not much forward progress. Despite last week’s election, we refuse to go backward.

We demand:

1. Affordable access to gender-affirming, non-discriminatory health care.

Since the adoption of the Medicaid expansion, we have been left out of the loop, as none of the states in the Deep South has expanded their Medicaid programs to be in line with ACA recommendations. More and more, young transgender women are resorting to underground silicone to have their bodies feminized. Hormones are super expensive and are not available to young transgender women. In fact, if you are living with HIV and are not adherent to the HIV meds, in some areas you risk being cut off of hormone treatment. There are no gender care clinics or after care clinics here in Louisiana. Getting gender reassignment is dangerous whenever you have to travel out of state (closest in Georgia) and have to recover in cheap motels instead of at home. Gender affirming care is still a dream on the horizon and not available in the South.

In a needs assessment survey of transgender Americans released by Positively Trans this spring, only 67% of Latinx respondents and 75% of African American respondents reported having health care coverage. Just 70% of respondents earning less than $12,000 a year had coverage. And 53-82% of respondents who reported having possibly or certainly been denied care because of their gender identity or HIV status had gone six months or longer without health care since their HIV diagnosis. Given the South’s failure to expand Medicaid, it is highly likely that the numbers in the South are even higher than these figures.

Further, 8% of respondents to the survey living in the South had never had an HIV viral load test. Viral suppression was also a full 10% lower among respondents in the South than elsewhere (71% compared with 81%).

These grim numbers highlight the urgent need for access to health care that is affirming for people of all genders and affordable.

2. Inclusion of gender identity in non-discrimination and equal opportunity laws and policies.

The Positively Trans needs assessment survey shows that 65% of respondents earned $23,000 or less annually, with a full 43% earning less than $12,000. Extreme poverty related to discrimination in education and employment settings forces some transgender people to resort to survival sex work or other survival strategies as they worry about where they will be sleeping and what are they going to eat.

This marginalization also increases risk of HIV acquisition for people of trans experience. Homelessness, lack of socially acceptable employment opportunities, and mental health challenges resulting from internalized oppression are killing our transgender sisters and brothers. The suicide rate is alarming and no one seems to be addressing the root causes of the problems.

Employment may grant an unprecedented level of self-efficacy necessary to build better lives. Non-discrimination laws must include protections for gender identity, and employers must be trained to comply with these laws both in the employment process and on the job.

Housing discrimination also remains an enormous barrier to stable employment and health care.. Homelessness can make it all but impossible to secure or hold down a job, as well as making it much more difficult for people of trans experience living with HIV to stay engaged in care. Non-discrimination laws and policies around housing must protect gender identity and must be enforced. Additionally, transgender individuals should have equal access to affordable housing opportunities.

Despite these challenges, I must point out that there is some growth that has been happening in our lives. For instance, we are more visible than we have ever been. People are now listening to our stories, and some organizations like PWN have embraced us. It is wonderful to know that there are some people who are committed to changing the political climate to one of inclusion and love. As we continue to change hearts and minds by sharing our truths, we demand that our neighbors, public and private institutions, and policymakers put down their prejudgments and recognize us as equal, so that we can finally get the respect that we need to thrive and supersede all that is against us in this world.

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I (Still) Believe that We Will Win.

November 15, 2016: Today, we grieve. Tomorrow, we fight.

Resistance in the face of terror is nothing new for our communities.

Our bodies are transgressive: Black, brown, and otherwise pigmented; queer; HIV-containing; border-crossing.

Our bodies and those of our ancestors have mostly migrated – some by choice but many by force – to a country that does not love us. 60 million people told us that last week. But our ancestors have been organizing in the face of hate, bigotry, terror, and loss for hundreds of years. We will not stop now.

Combatting racism, misogyny, xenophobia, transphobia, and patriarchy is an everyday reality for women living with HIV in the U.S. We are not strangers to living in fear or to having our rights violated. We know full well that justice has always been a fantasy for many of our members because Lady Justice’s blindfold is just for show; the heavy fingers of bigotry and resentment have weighed on the scales of justice throughout American history.

Regardless of the election’s outcome, we would have had to continue to fight vociferously for the safety, health, dignity and equality of ourselves and our loved ones. With a different outcome, our work likely would have been defined by an offensive strategy: pushing for progress and accountability to campaign promises. What transpired with last week’s election sets us back on the defensive, threatening decades of progress for women, people of color, those of us living with chronic health conditions and disabilities, queer and trans people—that is, just about everyone in this country who is not a white male.

For now, we commit to encircle and uplift those who will be increasingly targeted in the face of a Trump administration – for being brown, Black, queer, Muslim, immigrant, indigenous, non-English-speaking, womyn, and trans and gender non-conforming. Our next steps cannot be a reform agenda. Our tactics must be radical, revolutionary, and intersectional – building and centering leadership and strategic investment where it is most needed. Civil rights were not granted through an election; they were won in the streets.

Still, it is not enough to protest in the streets while we allow the institutions we work for and that purport to serve us to perpetuate the same oppressions we are fighting in our governmental institutions. We must actively work to combat racist, misogynistic and patriarchal practices within institutions and organizations, while we fight state-sanctioned violence.

And at the same time, we commit to radical self-care, because our preservation, health and dignity itself is revolutionary. As the great Audre Lorde said: “Caring for myself is not self-indulgence, it is self-preservation, and that is an act of political warfare.”

Elections have consequences, and we fear the worst from this one; but that only means we must fight harder, smarter and more relentlessly than ever before. In the coming weeks, months, and years, we must work intersectionally and in solidarity. We cannot work narrowly on one issue; more than ever, we need to fight for a broad progressive agenda, inclusive of ensuring that our very rights to healthcare, food, housing, land, movement, migration, and even to participate in democracy are protected. Our fates are intertwined. Only through fierce solidarity will we be strong enough to withstand the attacks on our communities and our very right to exist.

We will fight as if our life depends on it, because it does. In the meantime, love each other fiercely and hold each other tight.

See you in the streets and in the halls of Congress.

In sisterhood and solidarity ~
Positive Women’s Network – USA

Read PWN-USA Communications Director Jennie Smith-Camejo’s call to white people to engage in this moment:

“White friends, I understand your grief, and I know it’s real. I am living with it too. We are grieving together-mostly for the death of a rosy vision that many of the people around us, people we know and love, never had the privilege of believing in. Now it’s time for us to stand in that discomfort and feel it. Really feel it. And think about it. And talk about it. Not just to each other, but to everyone. To other white people specifically.” Read more here.

On Third Day of Action to End Violence Against Women Living with HIV, PWN-USA Demands End to Criminalization & Other Forms of Structural Violence

doa-soc-media-graphic
OCTOBER 21: Women with HIV simultaneously live with the effects of trauma resulting from interpersonal, community, and institutional violence. Studies have shown that the lifelong and compounding effects of these different forms of violence may have consequences far deadlier than the virus itself. October 23, Positive Women’s Network – USA (PWN-USA), along with dozens of endorsing organizations, will observe our third Day of Action to End Violence Against Women Living with HIV, releasing a factsheet highlighting the many forms of violence impacting women living with HIV and their communities, with a special focus on criminalization, discriminatory law enforcement practices and other forms of

teresa-w-proclamation-for-doa
Teresa Sullivan, PWN-USA Philadelphia Senior Member, displays city proclamation

structural violence, and to offer solutions and ways that government, institutions and organizations can help prevent and mitigate violence and trauma. We will also be hosting a Twitter chat Monday, Oct. 24, at 2 PM ET/11 AM PT to look at the promise of trauma-informed care for women living with HIV as a means to healing the trauma that is far too often a barrier to retention in care (follow the hashtags #pwnspeaks and #EndVAWHIV). Community events are also being held in various cities, and members in Philadelphia and Houston secured proclamations from their cities declaring October 23 the Day of Action to End Violence Against Women Living with HIV.

Laws criminalizing people living with HIV (PLHIV) disproportionately affect over-policed communities, including women of color (who make up 80% of the epidemic among women) and women of trans* experience. Harassment and brutality by police and law enforcement create hostile environments that perpetuate trauma in communities of color and other communities significantly impacted by HIV. Consequently, for the 2016 National Day of Action to End Violence Against Women Living with HIV, PWN-USA demands:
  • Repeal and reform of laws criminalizing HIV exposure, non-disclosure and transmission
  • An end to law enforcement practices that target communities disproportionately impacted by HIV, including people of trans and gender nonconforming experience (TGNC), sex workers, people who use drugs, immigrants, people who are unstably housed, people with mental illness, and communities of color
  • An end to stigmatizing and discriminatory interactions, methods of surveillance and brutalization of PLHIV and communities impacted by HIV at the hands of law enforcement
  • Elimination of barriers to safe, stable, and meaningful reintegration into the community for those returning home from jail and prison, those with criminal convictions, and the loved ones who support them.
PWN-USA called for the first Day of Action in 2014 in response to several high-profile murders of women following disclosure of their HIV status. Last year, community events were held in at least 18 cities, as well as a Twitter chat with 228 participants that reached 1.6 million people. 18 blog posts and statements were submitted by individuals and organizations in honor of the Day of Action. PWN-USA hopes this year’s day of action will continue to raise awareness, put forward solutions and mobilize advocates to push for meaningful change to end structural and institutional violence in the form of criminalization of our communities.
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PWN-USA Gets Ready to SPEAK UP!

PrintSeptember 19, 2016 – It’s hard to believe, but we’re only about a week away from SPEAK UP! 2016 National Leadership Summit for Women Living with HIV. We’d like to thank our dedicated Summit Planning Committee for their many hours of time and energy spent planning this Summit to be the best yet!

We look forward to welcoming over 250 women living with HIV to Fort Walton Beach next week. Some are seasoned advocates who have long been involved with PWN-USA and who attended SPEAK UP! 2014; for others, this may be the first conference ever, and an introduction to advocacy. We welcome both and everyone in between, regardless of your experience with advocacy.

To help orient participants to the Summit, we have scheduled two special orientation webinars for registered participants for this week! Click on a day/time below to register for that webinar. If you cannot participate in either webinar, a recording will be available on our website by the end of the week.

Tuesday, September 20, 6 PM EDT/5 PM CDT/4 PM MDT/3 PM PDT

Thursday, September 22, 12 PM EDT/11 AM CDT/10 AM MDT/9 AM PDT

cover-art-final-2We also have the complete program available right here on our website now! Check it out here.

We have put together some travel tips for you as well! Questions about what you should bring? What your registration fee does and doesn’t cover? Find answers here.

We would love to hear your thoughts, feelings and expectations as you get ready for the Summit and throughout the Summit! Write a blog for us! Get started here.

We look forward to seeing you next week!

 

 

California Gov. Jerry Brown Signs HIV-Positive Organ Donation Bill

May 27, 2016–Sacramento: California Governor Jerry Brown today signed a bill that allows organ transplants between HIV-positive donors and HIV-positive recipients. Senate Bill (SB) 1408 was authored by Sen. Ben Allen (D-Santa Monica) and co-sponsored by Equality California, AIDS Project Los Angeles, the Los Angeles LGBT Center, and Positive Women’s Network-USA. The four organizations are part of the coalition Californians for HIV Criminalization Reform (CHCR), itself a supporter of the bill. SB 1408 brings state law in line with federal law and passed both the Assembly and Senate unanimously earlier in the day.

“These lifesaving surgeries have been proven safe and are now allowable under federal law,” said Allen. “There is no reason for state law to maintain an antiquated prohibition on organ donation by HIV-positive persons. By expanding the pool of organ donors, we will have shortened the time for all persons on the organ donor waiting lists, and saved lives in the process.”

The number of individuals in need of organ transplants far exceeds the availability of healthy organs. Yet California law criminalizes transplantation of organs and tissue from an HIV-positive donor to an HIV-positive recipient. Allowing the donation HIV-positive organs and tissue will save the lives of hundreds of HIV-positive patients each year, and shorten the waiting list for individuals awaiting transplants.

Read the full press release from Equality California here.

Young Women Living with HIV Deserve Support and Leadership Roles in HIV Community

PWN-USA Statement for National Youth HIV/AIDS Awareness Day

APRIL 8, 2016: Young women living with HIV have unique needs that often go unaddressed. HIV stigma, discrimination, ageism, complexities of treatment regimens, and economic challenges present a unique set of barriers to care and service delivery that can result in isolation, depression, and poor health outcomes. Navigating disclosure, dating, sex, employment, education, and parenting may be entirely different for young people living with HIV than for older adults. For those born with HIV, the realities of being a long-term survivor at age 20, 30, or 35 may have particular physical and psychological implications. In the United States, mass incarceration, community violence, and growing economic inequality may be affecting young generations impacted by HIV in unprecedented ways.

“When we talk about the needs of women, social support is critically important to our overall wellbeing,” says Grissel Granados, a young woman born with HIV who currently works as an HIV and STI testing coordinator in Los Angeles, and who released a documentary last year, We’re Still Here, exploring the complexities and challenges of growing up with an HIV diagnosis. “Even as we have seen funding cut for women’s support groups, communities of women have found ways to come together anyway. However, for young women living with HIV, it is much harder for them to create community with other young women–being that they are so few in numbers in any given city, young women don’t even know each other. There are not enough young women participating in larger HIV spaces because their needs are not being addressed and because they are not seeing themselves. As a larger community of HIV advocates, we need to make sure that we are intentional about including young women and supporting spaces that can bring young women together, even if it’s just to build a network for social support.”

In honor of this year’s National Youth HIV/AIDS Awareness Day (NYHAAD), Positive Women’s Network – USA (PWN-USA) calls for a national commitment to addressing the needs and upholding the rights of young people living with and vulnerable to HIV. Advocates for Youth has just released a NYHAAD Bill of Rights, proclaiming:

1. The right to live free from oppression,
2. The right to education,
3. The right to prevention,
4. The right to care and treatment, and
5. The right to live free from criminalization, discrimination and stigma.

“It’s an aspiration of mine to see something like this NYHAAD Bill of Rights in full motion because our young people are worthy to walk in this world with all provided tools, absolute support and love,” says Tranisha Arzah, a PWN-USA Board Member born with HIV who works as a peer advocate in Seattle. “If we demand these rights, with the full support of the larger community, young people can not only thrive but lead the way toward a future where barriers to prevention, treatment and care like stigma and discrimination no longer exist.”

PWN-USA wholeheartedly endorses this bill of rights. As we move well into the fourth decade of the HIV epidemic, we further call on the HIV community to endorse and actively promote leadership by young people living with HIV. We believe that if this epidemic ever sees its end, it will be because of effective, supportive and strategic intergenerational leadership building on the lessons of the past while looking toward a radical and visionary future.

PWN-USA is fully committed to empowering and supporting young women living with HIV to organize and strategize; to demanding and upholding their rights to healthcare, including sexual and reproductive care, that works for them and meets their unique needs; and to ensuring their meaningful participation in decision-making spaces.

We urge young women to present at and/or attend 2016 SPEAK UP! A National Leadership Summit for Women Living with HIV, where they will be welcomed, embraced, and where they can educate other women on their needs, concerns and vision.

Please join us on Twitter today at 4 PM ET/1 PM PT for a dynamic Twitter chat with Advocates for Youth about Article 5 of the NYHAAD Bill of Rights: The Right to Live Free from Criminalization, Discrimination and Stigma. Follow the hashtag #NYHAADChat and join the conversation. See you online!